Hello all,

It’s been a pretty quiet week, given that I didn’t go to Unitas for my embolisation, as was originally anticipated (see my posting of 15.07.2008 for the reasons behind this decision). Although I should be getting ready to gather up all my goodies here and go home, I feel that may still be a far way off. Yesterday a Doctor reported that I currently have tachypnea, which translated from Greek (yes, while hanging around the neonatal ICU I’ve been brushing up on my languages), means abnormally rapid breathing. Pronounced tack-ip-nea, its comes from the combination of the Greek prefix for rapid or fast, tachy, and the suffix pnoia, meaning breath.

Additionally, my liver is not clearing as expected, and my paediatrician sent my Mom an SMS today that she is also worried about my kidney functions. This evening when my folks came to visit, my Dad did his usual snooping around my charts, scans and reports. He found a bunch of notes referring to a liver and a muscle biopsy; so clearly there are a couple of things that are not well with me at the moment. What troubles me is that there don’t seem to be apparent reasons nor remedies for my vital statistics being somewhat irregular.

This is causing my Mom and Dad much distress, and my Mom is really taking this gravely at the moment. My Dad is trying his best to comfort her, but each tear that drops onto my little nest is rapidly followed by another, and then another. She looks so sad and worried at the moment, and I really wish I could just get my little body stronger and better so that I can at least go home for a while. I’m convinced my Mom will feel so much better if I were at home and things were normal.

I really look forward to the days that I can lie in my own cot, have my Mom and Dad bathe me, be visited by the occasional curious cat, have my nappies changed in the comfort of my own room and most of all not be surrounded by machines that constantly make dreaded noises that interfere with my dreams. I long for the day that I can feel sunlight on my little body, and hear the chirp of birds outside my bedroom windows, and the dull sound of Roxy and Jake barking at an interloper in the park opposite my folk’s house, the very same park that my Mom and Dad are wanting to take me to be surrounded by trees and grass and insects.

But alas, all that surrounds me now are confounded machines and pumps and noisy devices. I know they’re all there to keep me going and to alert anyone of a degradation of my stats, but since I’ve been here four weeks now (yes, I’m four weeks old today), it is getting really tiresome for me, my folks and all my devotees that root so determinedly for me.

In closing tonight I would like to ask you to keep me in your thoughts and prayers, and keep sending angels, guardians, spirit guides to help me grow from strength to strength and reach good health.

Good night for now.

Lots of love,


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6 Comments on Unsure of the next steps . . .

  1. Gillian says:

    Oh my goodness, they really are messing around with you aren’t they. Testing this checking that its no wonder that people are a bit “down” at the moment. Talk about one step forward two steps back. Hang in there Lynn and Norwin, your baby needs you to be so strong at this time. Faith and trust in the people caring for Jarrod will bring you through what must feel like the worst of times. All three of you are in our constant thoughts and prayers.

    Gillian, Oliver, Ryan and Kirsten

  2. Bronwyn says:

    Oh you precious little bundle, we are sending you and your mommy and daddy all our love, light, and best wishes. You are all constantly in our prayers, and thoughts, and we pray that you will get stronger and stronger by the day and before you know it you will be in your own little cot in your own bedroom, where your mommy and daddy can hold you and comfort you all the time.

    Love to you all
    Bronwyn, Gary, Brannon and Rhianne

  3. Jenni says:

    Honey Pie, hang in there, there is a whole world of wonder just waiting for you. I know that it’s difficult to be strong at the moment but some words of wisdom from Lisle when I was going through a tough time was NEVER GIVE UP! These words I pass on to you, and to your Mommy and Daddy. Lots of Love and prayers for you. Love Jenni

  4. Caroline says:

    As usual you guys will be in my thoughts this weekend. Please look after yourselves. Keep strong.

    And he is a beautiful boy…can’t wait to see photo’s with no tubes.

    All my best wishes.

  5. Lisle says:

    Jarrod, thank you so much for the update. I can’t belive you have done so much in your first four weeks on earth! My goodness me…. Keep going little lad. Soon your Moms tears will be those of joy when we are all celebrating your first birthday.
    Love Lisle
    Ps i reckon at the end of this, yor Dad (with all his snooping) would make a pretty good Doc!!!

  6. Claudi says:

    Hey guys,

    I am sorry to hear about the new things that you are worried about. Remember you made it this far (4 weeks! yey 🙂 ) So try to be patient and hang in there, things might soon change for the better. I will be praying for – and thinking of you guys.

    Stay strong, Love Claudi

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