Oct

6

Porcelain Anniversary

Monday morning I woke up to congratulate Mommy and Daddy on being married for 18 years. I gave them cards and we had a little celebration. The rest of the week was pretty uneventful. I did my usual activities at school and had Be Sharp Beetles on Wednesday. Our theme this week as Lights, Camera, Action. It was very apt as Daddy had gotten me the new Thomas and Friends video – King of the Rails. I loved it and have watched it every day.

On Friday both Mom and Dad arrived at school to collect me. It had been an exciting day as it was photo day. Dad had gelled my hair in the morning and Mommy put make-up on the bruise on my forehead where I’d been squashed by some of the kids at school. As fate would have it, I also had a cut on my cheek – it seems I always look like I’ve been through the wars when its photo day.

Mom and Dad both came with to Lauren for my OT, which was really nice. In the afternoon Granny, Mommy and I gardened and planted seeds and flowers.

Saturday Daddy and I headed to Randburg to meet with some potential tenants – I always enjoy these meetings to see how my investments are doing! Afterward we drove past our old house for a quick look. It looked a little sadder than when we’d left it. We then met up with Mommy at Sandton City for lunch. Back home we played in the afternoon.

Sunday Daddy and I went to Builder’s Warehouse for DIY stuff. It was really fun. I grabbed a measuring tape and measured everything I could. At home we lunched, DIYed and then I got muddy in the garden before going for a long siesta.

Until next week!

Jay-Bee

Photo 1 Cooking

Photo 2 Checking the recipe

Photo 3 I ran through the sprinkler before OT at Lauren’s place!

Photo 4 Looking at myself

Photo 5 Two chairs works better than one

Photo 6 Off to my OT session

Photo 7 Mickey and Missy chilling out in guest room

Photo 8 Measuring stuff at Builder’s Warehouse

Photo 9 Muddy play

Photo 10 Making faces

Photo 11 Being silly

Photo 12 Grrrrrr

Posted by Norwin Year Five Subscribe to RSS feed

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About Me

My name is Jarrod Lederer, son of Lynn and Norwin Lederer. I was born on 19.06.2008, and at birth I was diagnosed as having an arteriovenous malformation (or AVM for short). It is a very rare congenital condition that results in the veins and arteries in my brain (specifically in the Vein of Galen), to merge, or short circuit. The effect is that blood rushes from my heart and lungs, through the brain, straight back to the heart, without reducing in pressure or dispensing of much needed oxygen.

My prognosis at birth was 0%, i.e. literally no chance of survival. But thanks to my wonderful Mommy and Daddy's determination, and my experienced and dedicated medical team, I survived. It has not been an easy journey, as I spent the first 5 months of my life in NNICU (neo-natal ICU), and to date I've had 13 procedures, 7 of which have equated to brain surgery. I was fed through a tube in my tummy for almost a year, and my muscles all atrophied as a result of my lack of inactivity. My little heart failed four times, and my lungs collapsed more than once. I spent much of my time in hospital on a ventilator, making it nearly impossible to get warm comforting hugs from my Mommy and Daddy. I basically spent six months staring at the ceiling!

On more than one occasion I almost died, either from surgical complications or my heart or lungs not being able to keep up. Each time the love and support of my fans carried me through, as well as expert and immediate attention of my medical team.

Now, I am home, and every week I still continue to publish my blog, which documents my life and depicts my antics in pictures. I'm not yet out of danger, and Mommy and Daddy heave a sigh of relief each time I make it through the night successfully, or another procedure. But with your help, support, prayers, and positive energy it will certainly make it easier on all of us. Please come back to visit regularly, or subscribe (click here) and have my latest blog postings delivered directly to you.

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