Wow! I’m so moved by everyone’s incredible support over the past week. Its stunning how all my fans are rallying to offer support and help, and I’m really touched by all the amazing offers from friends to assist in my plight to get overseas for more surgery.
The great news is that Prof Taylor in Cape Town has been pouring over my scans for the last couple of days. Also, Mommy found an amazing surgeon at Harvard Medical School that’s also interested in my case. Last but not least there is Dr Rodesch in Paris at the Foch Hospital.
So my options are looking good, but we’re no closer to a decision, as botched surgery will leave me blind and paralysed from the waist down, whereas no surgery will probably result in my premature demise. As we’re facing such hectic decisions, we’ve opted for an early spring holiday to clear our minds, so I’m blogging from Umhlanga.
Let me get into my week, without further ado.
Monday was really a quiet day and pretty routine. Tuesday after school Mom and I went grocery shopping and I proceeded to entertain all the other shoppers at Pick ‘n Pay, by doing all my own shopping. In the late afternoon Mom and I went to see Dr Anthony and he had a special surprise for me – a brand new stethoscope! I was thrilled. Back home I checked everyone’s pulse.
I was very brave on Wednesday morning at school – I didn’t protest, I just went to my classroom and sat down to do my work. There was no music after school on so later in the afternoon we met Ryan and Claudi at Smudge where I managed to get green paint all over my face, and Mom’s!
A special surprise awaited me after school on Thursday – brand new DVDs! I got The Lorax, Horton Hears a Who and a box set of Thomas and Friends. I spent the rest of the day at home watching DVDs. So awesome!
A really special surprise awaited me on Friday – Mom announced we’re going on a beach holiday. Woot! I was thrilled. But first we had a session with Lauren and then Mom took me for a quick play at McDonalds. Back at home in the afternoon we met with the house sitter who would be looking after our animals while we were away, and then Granny arrived. I screamed in joy! We played up a storm in the evening and then it was one more sleep to the beach.
Saturday morning I woke up and immediately said “Mom, are we going to school and Daddy to work?”, Mom said “No, we’re going on holiday” to which I responded “Yay! Right now?”
Soon we were on the road, and I watched DVDs and played Angry Birds on the drive. Once we were closer to the sea, we competed to see who would see the sea first – I won! As we opened our doors at the Cabana Beach Lifestyle Resort a clown appeared and handed me my Sun Kids pack of goodies. So awesome!
We’d barely been to our room for five minutes and we were off to the beach. I didn’t waste any time starting to dig and make sand castles. The sea was even nice and warm.
First thing Sunday morning I played ‘hide and go seek’ with Granny in our room, and then we headed to the beach. I played, dug holes, waded in the sea, and we climbed on the rocks. As it started getting really hot on the beach, we opted to head up to the pool. Mom, Dad and I swam in the heated pool and had an awesome time.
Before long it was time for a team snooze. Afterwards we went back to the beach where Dad showed me how to fly his stunt kite. It was such fun – but also because the lines are so dangerous at high speeds I couldn’t fly it on my own. It was massive fun nevertheless.
Major excitement has swept the country as South Africa has achieved four medals at the Olympics – 3 gold and 1 silver. Not only did Chad le Clos snatch a gold off Michael Phelps, but Cameron van der Burgh also broke the World Record in the 100m breast stroke. Our third gold came from the lightweight four rowing team. The silver medal was won by le Clos, also for swimming.
Well that’s it for this week. I’ll keep you posted on my condition.
Love,
Jarrod
Video 1 – Jarrod Being a Turtle (click here)
Photo 1 Making breakfast
Photo 2 Heading to the beach!
Photo 3 Yay! The beach
Photo 4 So good to be back
Photo 5 Ooooo, beach sand
Photo 6 Having a good roll around
Photo 7 Stretch
Photo 8 Waves are coming
Photo 9 Sand castle time
Photo 10 Bashing it down
Photo 11 Bat and ball time
Photo 12 Loving it
Photo 13 Dad being umpire
Photo 14 Getting sand off my feet
Photo 15 Hide and seek with Granny
Photo 16 Another hiding place
Photo 17 Phoning Tammy
Photo 18 Playing with Mom
Photo 19 Trying to escape the sea
Photo 20 Made it!
Photo 21 Need.to.get.higher.
Photo 22 Wave skipping
Photo 23 Running with Granny
Photo 24 Loving the beach
Photo 25 Dashing from Mom
Photo 26 Swimming with Mom
Photo 27 Time to get out
Photo 28 Kiting with Dad
Photo 29 Into a dive
Photo 30 Awesome
Photo 31 Whoowhoo
Photo 32 Special Daddy moment
Photo 33 ‘Til next week
Thinking of you guys! Enjoy the time at the coast.
My penny’s worth: there isnt a reason the surgery should be botched. You have to do all you can.
Love
K
The bible says that if you need wisdom, you must just ask. I pray that you will know God’s wisdom in these very tough decisions. I see that Christopher is not the only one who likes to use me as his jungle gym!
Dear Lederer family
We are thinking of you during this time of decision making. God has protected little Jarrod since his birth and he had managed to overcome obstacles which adults can not even comprehend.
The right door will open and I hope that your holiday will be extra warm and that you will have extra fun.
xxx
Huge hugs and lots of love. xxx